Week 19 Escape

8 Apr

Last week started out on a low note, my Uncle Ed passed away unexpectedly.  We were quite surprised by the news and automatically started to plan on how to get to Boston for the funeral.  It took us a few hours to realize we needed to take a deep breath and gather some facts before embarking on airplane travel.  We obviously consulted with Susie’s doctors.  ‘No’ was not a response that was expressed, but ‘caution’ seemed to be the presiding deep sentiment.  After much deliberation, hand wringing and looking at flights over a couple of days, we decided to send our condolences, not increase Susie’s risk of infection and cherish our family reunion memory of my uncle from this last summer.

The above being said, last week was not a walk in the park.  Walking seemed a bit harder for Susie.  Maybe it was the heat or me tossing and turning/ keeping her up at night, but we were quite tired come end of the week.  Susie went on Thursday, instead of Friday, for IVIG treatment and Complete Blood Count (CBC).  To which, her counts are unchanged.  We were hoping for them to continue increasing, but staying the same is better than going down.  With her counts stable, but low, the decision is to skip a week of treatment and see how her blood responds.  Susie still needs to get a CBC, but there is no doctor appointment this week.

imageSusie also received the all clear to travel to Denton for Todd and Han’s wedding.  The wedding was delightful.  We saw old friends and had a great time.  Susie even did a little jig on the dance floor, though no jitterbug spinning.  She also found the energy to stay awake to just after midnight, granted she slept-in until almost noon.  It is amazing to see how she has improved in just a month, my wonder woman.  When going to sleep on Sunday night, she said ‘Going to the wedding was like breaking out of jail’.

I guess we are at the point that escaping on the weekend is a possibility.  We’ll take it slow for now.

Guy Lipof

Accomplished Engineering Executive with deep consulting and sales expertise in healthcare and life sciences, particularly in oncology, driving business strategy, delivering innovative solutions, and improving patient outcomes. Care partner and advocate for raising awareness about and investment towards Brain Cancer Research, such as Glioblastoma Multiforme and IDH mutant gliomas.