What a great adventure!
For the past few years, my involvement in two brain cancer registries and serving on their Research Advisory Boards has been a fulfilling experience. However, recent changes in the healthcare landscape, such as the spinoff of Watson Health from IBM … Read More »
We had family come into town this last week/ weekend to celebrate Susie’s mom turning 90. In addition, Callahan’s General Store was celebrating its 45th Anniversary. So, Susie’s brother combined the two events to organize a family reunion. So not … Read More »
Over last three decades, we hosted a summer solstice party to celebrate our June birthdays. We continued the tradition when we lived in the UK, and upon our return to Austin. However when Susie experienced complications from brain cancer recurrence … Read More »
It’s been two months since my last post. We were supposed to join my family in New England for Thanksgiving. I was combining the holiday with attending the 26th Annual Meeting and Education Day of the Society of Neuro-Oncology. I … Read More »
This week is the 15th International Brain Tumour Awareness Week, held from Saturday 30-OCT-2021 to 06-NOV-2021. This event is organized by the International Brain Tumour Alliance, and is intended to encourage activities that draw attention to particular challenges of brain … Read More »
This week was the yearly Head to the Hill event, organized by the National Brain Tumor Society. I participated in the trainings and today joined meetings with senate and congressional staffers. It was the first time I physically met with … Read More »
So tonight I wrote a post that put me in Twitter Jail. My family has been without electricity since 2:00 AM Monday. We still don’t have power and the last two nights the temperature dropped to around 5 F. Over … Read More »
This blog post is part of my Capstone Project for the IBM Data Science Professional Certification, offered via Coursera. I specifically documented some of the challenges and twists and turns that a lay person might encounter digging into publicly available … Read More »
As a care partner to someone with brain cancer, I try to keep our day to day routine predictable. I’ve arranged tasks and expectations so our life is smooth flowing and is easy to manage. Most important to me is that … Read More »
This last month has been a sea of changes. Susie officially finished her therapy sessions at St. David’s Neuro Rehab. She had started physical, speech and occupational therapy around 9 months ago, after experiencing a pontine stroke. Her St. David’s therapists … Read More »
We had a relaxing time in Denver. We stayed with a high school buddy of mine, John. He had a terrific patio and the weather was beautiful. I was interested in doing a bit of cooking the second night we … Read More »
With Susie having a good neuro-oncology appointment, we set out on a two week road trip heading up to Minneapolis and over to the Black Hills of South Dakota, estimated at 3,500 miles. Our first leg was a short drive to Dallas, … Read More »
Susie and I had an Administrative Law Judge Hearing on the 19th of July. She applied back in 2008 for Social Security Disability. After chasing her claim for three years, we learned in 2011 that her claim was denied. The … Read More »