Belated Birthday w/ Crab

18 Jul

Over last three decades, we hosted a summer solstice party to celebrate our June birthdays. We continued the tradition when we lived in the UK, and upon our return to Austin. However when Susie experienced complications from brain cancer recurrence … Read More »

End of 2021 Update

1 Jan

It’s been two months since my last post. We were supposed to join my family in New England for Thanksgiving. I was combining the holiday with attending the 26th Annual Meeting and Education Day of the Society of Neuro-Oncology. I … Read More »

Brain Tumor Awareness and Swim Across America

2 Nov

This week is the 15th International Brain Tumour Awareness Week, held from Saturday 30-OCT-2021 to 06-NOV-2021. This event is organized by the International Brain Tumour Alliance, and is intended to encourage activities that draw attention to particular challenges of brain … Read More »

Twitter Jail with No Power

17 Feb

So tonight I wrote a post that put me in Twitter Jail. My family has been without electricity since 2:00 AM Monday. We still don’t have power and the last two nights the temperature dropped to around 5 F. Over … Read More »

Austin Neighborhood Analysis of COVID-19

13 Jul

This blog post is part of my Capstone Project for the IBM Data Science Professional Certification, offered via Coursera. I specifically documented some of the challenges and twists and turns that a lay person might encounter digging into publicly available … Read More »

Leaning on Family

2 Dec

As a care partner to someone with brain cancer, I try to keep our day to day routine predictable. I’ve arranged tasks and expectations so our life is smooth flowing and is easy to manage. Most important to me is that … Read More »

Spring Cometh Reflections

15 Apr

This last month has been a sea of changes. Susie officially finished her therapy sessions at St. David’s Neuro Rehab.  She had started physical, speech and occupational therapy around 9 months ago, after experiencing a pontine stroke.  Her St. David’s therapists … Read More »

August Road Trip, Heading Home

4 Sep

We had a relaxing time in Denver.  We stayed with a high school buddy of mine, John.  He had a terrific patio and the weather was beautiful.  I was interested in doing a bit of cooking the second night we … Read More »

August Road Trip, Heading North

29 Aug

With Susie having a good neuro-oncology appointment, we set out on a two week road trip heading up to Minneapolis and over to the Black Hills of South Dakota, estimated at 3,500 miles.  Our first leg was a short drive to Dallas, … Read More »

Disability Hearing

25 Jul

Susie and I had an Administrative Law Judge Hearing on the 19th of July.  She applied back in 2008 for Social Security Disability.  After chasing her claim for three years, we learned in 2011 that her claim was denied.  The … Read More »

Wetsuit Fights Feeling Cold

8 Sep

One of the side effects that has become chronic trying to recover from cancer treatment is always feeling cold.  This condition has ebbed and flowed over the last 3+ years.  We have worked around it with Susie wearing extra clothes … Read More »