Brain Tumor Project Update

23 Mar

I recently received an email from Count Me In’s Brain Tumor Project, previously called the “Brain Cancer Project.” Susie and I participated in the launching of the effort with other patients, advocates and the Broad Institute. In addition to volunteering, … Read More »

Follow-up Travel Travails

20 Mar

This last week, we traveled to Houston for Susie’s cancer follow-up at MD Anderson’s Brain and Spine Center. This is the first time, since the pandemic started, we’ve physically met with Dr. O’Brien (her neuro-oncologist). Actually it has been even … Read More »

Twitter Jail with No Power

17 Feb

So tonight I wrote a post that put me in Twitter Jail. My family has been without electricity since 2:00 AM Monday. We still don’t have power and the last two nights the temperature dropped to around 5 F. Over … Read More »

New Year says “Hold my beer”

11 Jan

I think most of us have been looking forward to trying to forget 2020. The word “unprecedented” has been uttered so many times, it reminds me of a scene from the Princess Bride. I’m specifically referring to Inigo Montoya’s response … Read More »

Nana’s Meatball Recipe

9 Nov

Over the last year I’ve been thinking about my great grandmother’s meatball recipe. I’ve asked my parents if anyone was given her recipe, which it seems like the dish died with her. So, I’ve spent a little bit of time … Read More »

Scanxiety and the Human Pin Cushion

29 Oct

Last week Susie had her regularly scheduled cancer follow-up, which happens every four months. Let’s start with the most important detail, which is her scan results show her brain cancer is stable. Stable means no progression of disease, i.e. her … Read More »

Hindsight is 2010

17 Oct

After September’s unpresidential debate, see Presidential Debate Shit Show, we’ve seen Corona Virus (aka SARSCov2/ COVID19) take center stage. This is partly due to President Trump and some folks who attended the Supreme Court nomination announcement for Judge Amy Coney … Read More »

Presidential Debate Shit Show

30 Sep

The first debate between President Donald Trump and former VP Joe Biden happened last night. Susie and I watched with our youngest, who is studying remotely this term. To say the debate was more an argument with some themes thrown … Read More »

Increased Hacking Attempts

25 Sep

As we edge closer to the November elections, I have noticed a disturbing trend. In addition to the partisan screaming from both Democrats and Republicans, I’ve noticed the location and number of attacks trying to gain administrator access to my … Read More »

ABTA Mock Brain Tumor Board

13 Sep

Yesterday and today I joined the 2020 National Conference for the American Brain Tumor Association (ABTA). While I enjoyed yesterday’s webinar sessions, I was particularly looking forward to two sessions being held today (Saturday), specifically a Brain Tumor Board (facilitated … Read More »

World Zionist Congress Results

11 Sep

This year was the first time I voted in the World Zionist Congress Elections. This was the organization’s 38th election. Surprisingly, I was unaware prior to this election that I could even vote, let alone do so via the internet. … Read More »

The Promising Pathways Act (S.3872)

22 Aug

Back in May, I participated in the Head to the Hill event. The focus was to urge congressional representatives and senators to fund vital research and clinical trials that target brain cancer, like Glioblastoma Multiforme. On July 22nd, Glioblastoma Awareness … Read More »