IDH-mutant Inhibitor Results at ASCO 2023

6 Jun

Last weekend was the annual meeting for the American Society of Clinical Oncology (ASCO). It started on Friday and concluded today, 06-JUN-2023. Over the weekend, results for the IDH-mutant glioma clinical trial called INDIGO were published and presented. This study … Read More »

Rare Disease Research and Funding

22 May

I’ve participated in multiple Head to the Hill events, both remotely and now in-person. This National Brain Tumor Society event directs patients, care partners and advocates to meet with US Congressional Representatives and Senators to encourage better funding of brain … Read More »

Merging Clinical Trial and Real-World Data

19 May

In my recent blogpost, I discussed my participation in a Quality of Life Roundtable centered around brain tumor patients. The roundtable included healthcare professionals from institutions like the NIH/NCI and tertiary cancer hospitals, as well as patients, caregivers, and advocates. … Read More »

Precision Medicine Path

14 Apr

With my involvement in the Low Grade Glioma Registry and Count Me In Brain Tumor Project, I think we are at the beginning of the precision medicine journey. I am seeing multiple similar endeavors that are looking at rare diseases … Read More »

SNO Podcast on IDH Mutant Gliomas

19 Jan

I recently listened to a Society of Neuro-Oncology podcast titled “IDH mutant gliomas; SNO consensus Review“. The podcast was basically a prompted question and answer session hosted by Dr. Ankush Bhatia with doctors Julie Miller, Nicolas Gonzalez Castro, Samuel McBrayer … Read More »

Radiology Report Terminology

18 Mar

With easier access to patient medical records, via online portals, and the ability to search terms and phrases in medical literature, I feel I’m inching closer to a better understanding of neurology, oncology and trauma of the brain. I don’t … Read More »

Hearing Aid Trial and Tribulations

12 Mar

When Susie was diagnosed with recurrent brain cancer, a Secondary Glioblastoma (IDH1-mutant), we discussed her treatment options with her Neuro-Oncologist at MD Anderson Cancer Center. We looked at clinical trials, surgery and other options. Her case was brought before a … Read More »