What a great adventure!
I was chatting last week with an acquaintance. He asked me why I was volunteering with the Low Grade Glioma Registry. I explained about Susie’s type of brain cancer and that the clinical and genomic data available to the public … Read More »
We had family come into town this last week/ weekend to celebrate Susie’s mom turning 90. In addition, Callahan’s General Store was celebrating its 45th Anniversary. So, Susie’s brother combined the two events to organize a family reunion. So not … Read More »
I recently listened to a Society of Neuro-Oncology podcast titled “IDH mutant gliomas; SNO consensus Review“. The podcast was basically a prompted question and answer session hosted by Dr. Ankush Bhatia with doctors Julie Miller, Nicolas Gonzalez Castro, Samuel McBrayer … Read More »
I have been participating for much of this year, representing the viewpoint of a brain cancer care partner, in the Low Grade Glioma Registry’s OPTIMUM research initiative. A couple of months ago I learned this initiative was part of the … Read More »
I recently finished watching a three part PBS documentary called The US and the Holocaust. While overall I think the program is well done, there are a couple of motifs I found problematic. The first motif is the filmmakers (Ken … Read More »
With Susie being immune compromised, we’ve been careful as to what we do. Over the last two years we had not flown to visit friends or family, but we have had friends/ family come stay with us. Our youngest also … Read More »
This weekend I received notifications of repeated failed login attempts from different IP addresses across the globe. This type of attack is coordinated by bots and is called a Brute Force Attack. While I mentioned last year in May I … Read More »
Over last three decades, we hosted a summer solstice party to celebrate our June birthdays. We continued the tradition when we lived in the UK, and upon our return to Austin. However when Susie experienced complications from brain cancer recurrence … Read More »
In the last 20 years, we have seen both the frequency and lethality of mass shootings go up. It is painfully apparent the Left and Right have retreated towards maximalist positions, i.e. banning vs no legislation. With widespread political polarization, … Read More »
With easier access to patient medical records, via online portals, and the ability to search terms and phrases in medical literature, I feel I’m inching closer to a better understanding of neurology, oncology and trauma of the brain. I don’t … Read More »
As we enter into another week of death and destruction in Ukraine, I continue to read the differing views from left, centrist and right leaning news media. Some of the stuff coming out of the left and right is downright … Read More »
When Susie was diagnosed with recurrent brain cancer, a Secondary Glioblastoma (IDH1-mutant), we discussed her treatment options with her Neuro-Oncologist at MD Anderson Cancer Center. We looked at clinical trials, surgery and other options. Her case was brought before a … Read More »
I think the first time I had French Onion Soup was with Susie’s mom. She had a recipe that was shared with her from a chef. It was delicious, but took many hours to prepare. Of course making your own … Read More »