Merging Clinical Trial and Real-World Data

19 May

In my recent blogpost, I discussed my participation in a Quality of Life Roundtable centered around brain tumor patients. The roundtable included healthcare professionals from institutions like the NIH/NCI and tertiary cancer hospitals, as well as patients, caregivers, and advocates. … Read More »

Precision Medicine Path

14 Apr

With my involvement in the Low Grade Glioma Registry and Count Me In Brain Tumor Project, I think we are at the beginning of the precision medicine journey. I am seeing multiple similar endeavors that are looking at rare diseases … Read More »

Reunions and Birthday Fun

14 Mar

We had family come into town this last week/ weekend to celebrate Susie’s mom turning 90. In addition, Callahan’s General Store was celebrating its 45th Anniversary. So, Susie’s brother combined the two events to organize a family reunion. So not … Read More »

SNO Podcast on IDH Mutant Gliomas

19 Jan

I recently listened to a Society of Neuro-Oncology podcast titled “IDH mutant gliomas; SNO consensus Review“. The podcast was basically a prompted question and answer session hosted by Dr. Ankush Bhatia with doctors Julie Miller, Nicolas Gonzalez Castro, Samuel McBrayer … Read More »

Brute Force Attacks

26 Jul

This weekend I received notifications of repeated failed login attempts from different IP addresses across the globe. This type of attack is coordinated by bots and is called a Brute Force Attack. While I mentioned last year in May I … Read More »

Belated Birthday w/ Crab

18 Jul

Over last three decades, we hosted a summer solstice party to celebrate our June birthdays. We continued the tradition when we lived in the UK, and upon our return to Austin. However when Susie experienced complications from brain cancer recurrence … Read More »