Yom HaZikaron and Yom HaAtzmaut

14 May

Israel Independence Day (Yom HaAtzmaut) is immediately preceded by Remembrance Day (Yom HaZikaron). This is done so that the memory of all the individuals who fought to create and keep the state and who lost their lives to aggression and … Read More »

Message for Hanukkah 2023

11 Dec

Last weekend, we hosted a small Hanukkah gathering. Like last year, my parents came to town, along with our eldest and his girlfriend. We had a nice mix of people, both family and friends. We even had a fire outside, … Read More »

Thirteen Days Ago

20 Oct

The Hamas terrorist organization launched a surprise attack against Israel on October 7, 2023. Their focus was to terrorize Israeli civilians. They murdered, raped, burnt alive over 1400 people, babies, children, parents, families and elderly. They captured over 200 hostages, … Read More »

IDH-mutant Inhibitor Results at ASCO 2023

6 Jun

Last weekend was the annual meeting for the American Society of Clinical Oncology (ASCO). It started on Friday and concluded today, 06-JUN-2023. Over the weekend, results for the IDH-mutant glioma clinical trial called INDIGO were published and presented. This study … Read More »

Rare Disease Research and Funding

22 May

I’ve participated in multiple Head to the Hill events, both remotely and now in-person. This National Brain Tumor Society event directs patients, care partners and advocates to meet with US Congressional Representatives and Senators to encourage better funding of brain … Read More »

Merging Clinical Trial and Real-World Data

19 May

In my recent blogpost, I discussed my participation in a Quality of Life Roundtable centered around brain tumor patients. The roundtable included healthcare professionals from institutions like the NIH/NCI and tertiary cancer hospitals, as well as patients, caregivers, and advocates. … Read More »

Precision Medicine Path

14 Apr

With my involvement in the Low Grade Glioma Registry and Count Me In Brain Tumor Project, I think we are at the beginning of the precision medicine journey. I am seeing multiple similar endeavors that are looking at rare diseases … Read More »

Reunions and Birthday Fun

14 Mar

We had family come into town this last week/ weekend to celebrate Susie’s mom turning 90. In addition, Callahan’s General Store was celebrating its 45th Anniversary. So, Susie’s brother combined the two events to organize a family reunion. So not … Read More »

SNO Podcast on IDH Mutant Gliomas

19 Jan

I recently listened to a Society of Neuro-Oncology podcast titled “IDH mutant gliomas; SNO consensus Review“. The podcast was basically a prompted question and answer session hosted by Dr. Ankush Bhatia with doctors Julie Miller, Nicolas Gonzalez Castro, Samuel McBrayer … Read More »