What a great adventure!
Holiday abroad and visiting guests.
I have been participating for much of this year, representing the viewpoint of a brain cancer care partner, in the Low Grade Glioma Registry’s OPTIMUM research initiative. A couple of months ago I learned this initiative was part of the … Read More »
With Susie being immune compromised, we’ve been careful as to what we do. Over the last two years we had not flown to visit friends or family, but we have had friends/ family come stay with us. Our youngest also … Read More »
I think the first time I had French Onion Soup was with Susie’s mom. She had a recipe that was shared with her from a chef. It was delicious, but took many hours to prepare. Of course making your own … Read More »
It’s been two months since my last post. We were supposed to join my family in New England for Thanksgiving. I was combining the holiday with attending the 26th Annual Meeting and Education Day of the Society of Neuro-Oncology. I … Read More »
Around the time our eldest came to town for a surprised Mother’s Day visit, we started planning a summer family vacation to Pagosa Springs, CO. We found a beautiful cabin on the San Juan river, about 10-15 minutes north of … Read More »
This last week, we traveled to Houston for Susie’s cancer follow-up at MD Anderson’s Brain and Spine Center. This is the first time, since the pandemic started, we’ve physically met with Dr. O’Brien (her neuro-oncologist). Actually it has been even … Read More »
Over the last year I’ve been thinking about my great grandmother’s meatball recipe. I’ve asked my parents if anyone was given her recipe, which it seems like the dish died with her. So, I’ve spent a little bit of time … Read More »
Just like we do each year, we celebrated our marriage in February. Many moons ago we would celebrate it with a Sunday brunch at an interior Mexican restaurant called Fonda San Miguel. It is a lovely restaurant, but the brunch … Read More »
When Susie was first diagnosed with brain cancer, back in January of 1999, I felt it was important to keep a journal and take notes with each doctor visit. I would read these notes a week before neuro-oncology appointments. Also … Read More »
We had a lovely two weeks traveling to see friends and family between Austin and Minneapolis. Our first part of our vacation was in Oklahoma visiting our niece’s family, followed by lakefront cabins with a childhood friend of mine from … Read More »
Before we went on vacation, Susie had a brain cancer follow-up. She had recently been diagnosed with osteopenia, where we upped her impact related exercise and added a calcium supplement. Over the last month to two, I noticed some negative … Read More »
After last Sunday’s #BTSMChat, I happened to come across a tweet inquiring if anyone was reaching a tumorversary or other milestone. This tweet obviously had me think back to when our life with brain cancer began and some of the milestones we celebrated along … Read More »
As a care partner to someone with brain cancer, I try to keep our day to day routine predictable. I’ve arranged tasks and expectations so our life is smooth flowing and is easy to manage. Most important to me is that … Read More »