What a great adventure!
Holiday abroad and visiting guests.
When Susie was first diagnosed with brain cancer, back in January of 1999, I felt it was important to keep a journal and take notes with each doctor visit. I would read these notes a week before neuro-oncology appointments. Also … Read More »
We had a lovely two weeks traveling to see friends and family between Austin and Minneapolis. Our first part of our vacation was in Oklahoma visiting our niece’s family, followed by lakefront cabins with a childhood friend of mine from … Read More »
Before we went on vacation, Susie had a brain cancer follow-up. She had recently been diagnosed with osteopenia, where we upped her impact related exercise and added a calcium supplement. Over the last month to two, I noticed some negative … Read More »
After last Sunday’s #BTSMChat, I happened to come across a tweet inquiring if anyone was reaching a tumorversary or other milestone. This tweet obviously had me think back to when our life with brain cancer began and some of the milestones we celebrated along … Read More »
As a care partner to someone with brain cancer, I try to keep our day to day routine predictable. I’ve arranged tasks and expectations so our life is smooth flowing and is easy to manage. Most important to me is that … Read More »
This summer was quite the whirlwind. We watched our first child walk the stage for his masters degree and celebrated our second child’s summer job at Lin Asian Bar and Dim Sum. So much so, we had quite a few family meals there. Our … Read More »
We just returned from a great trip in California. The motivation was our eldest child’s graduation from Cal Poly. He recently completed a Masters Degree in Biomedical Engineering. My parents joined us for the week, just north of San Luis Obispo, … Read More »
This last month has been a sea of changes. Susie officially finished her therapy sessions at St. David’s Neuro Rehab. She had started physical, speech and occupational therapy around 9 months ago, after experiencing a pontine stroke. Her St. David’s therapists … Read More »
In November, Susie had a cancer appointment at MD Anderson. The short synopsis is her tumor region is stable (no disease progression) and her pons brain stem stroke is resolving. She now moves to a 4 month interval for cancer follow-ups. … Read More »
We had a relaxing time in Denver. We stayed with a high school buddy of mine, John. He had a terrific patio and the weather was beautiful. I was interested in doing a bit of cooking the second night we … Read More »
Like our drive to Minneapolis, our journey to the Black Hills of South Dakota was around nine hours. Susie alternated between the front seat and the back bed I assembled in the rear of our wagon. As we left Minnesota, … Read More »
With Susie having a good neuro-oncology appointment, we set out on a two week road trip heading up to Minneapolis and over to the Black Hills of South Dakota, estimated at 3,500 miles. Our first leg was a short drive to Dallas, … Read More »
Susie and I returned from her Neuro-Oncologist appointment today. It has been quite a whirlwind last four months. After three months of Hyperbaric Oxygen Treatment, Susie had a brainstem stroke in April. She met with many doctors and has completed around three … Read More »