What a great adventure!
I was looking back at my notes on experiences during Susie’s initial and recurrent brain cancer diagnosis/ treatment. My thoughts centered around what we might be able to do in preparation for another recurrence/ progression. The most challenging experiences IMHO were surviving … Read More »
After last Sunday’s #BTSMChat, I happened to come across a tweet inquiring if anyone was reaching a tumorversary or other milestone. This tweet obviously had me think back to when our life with brain cancer began and some of the milestones we celebrated along … Read More »
As the year comes to a close, I often reflect on past events and activities. Sometimes my reflections are purely going down memory lane. Other times they are around what could be improved. I do find it funny how our perspectives … Read More »
As a care partner to someone with brain cancer, I try to keep our day to day routine predictable. I’ve arranged tasks and expectations so our life is smooth flowing and is easy to manage. Most important to me is that … Read More »
This summer was quite the whirlwind. We watched our first child walk the stage for his masters degree and celebrated our second child’s summer job at Lin Asian Bar and Dim Sum. So much so, we had quite a few family meals there. Our … Read More »
We just returned from a great trip in California. The motivation was our eldest child’s graduation from Cal Poly. He recently completed a Masters Degree in Biomedical Engineering. My parents joined us for the week, just north of San Luis Obispo, … Read More »
The month of May has been quite busy for us. We’ve had lots of visitors in town. First our nephew (with his sweet daughter) stayed with us for a few nights. They joined us at the YMCA for one of our swimming … Read More »
I recently learned the university our son attends, California Polytechnic State University, is experiencing a myriad of clashes related to identity politics. An excellent summary of recent events, responses and an analysis can be found on the Times of Israel website: BSU … Read More »
This last month has been a sea of changes. Susie officially finished her therapy sessions at St. David’s Neuro Rehab. She had started physical, speech and occupational therapy around 9 months ago, after experiencing a pontine stroke. Her St. David’s therapists … Read More »
As I look back on last year, I think about the obstacles Susie overcame and the ones we are still trying to get over/ around. The neurological obstacles associated with brain cancer and stroke have been very real. Core capabilities all of us tend … Read More »
Just before New Years, my father-in-law (Fred McCarthy) passed away. He was just shy of 95 years old. Fred and Susie’s mom (Leora) married almost twenty years ago. Our children have known him as their grandfather. Fred and Leora have … Read More »
On December 6th, President Trump announced the US recognized Jerusalem as Israel’s capital and would move the US Embassy there. His language was carefully worded not to predetermine borders or claims on the holy sites. He left those elements to … Read More »
In November, Susie had a cancer appointment at MD Anderson. The short synopsis is her tumor region is stable (no disease progression) and her pons brain stem stroke is resolving. She now moves to a 4 month interval for cancer follow-ups. … Read More »