What a great adventure!
This week started off with a visit to see our local hematologist and neuro-oncologist. Susie’s Platelets remained above 20k, but her hemoglobin continued to go down. It ended up falling below 7, so Susie went in on Wednesday for a … Read More »
This week was much like last week, i.e. daily IV steroids and Thursday immunoglobulin (IVIG). The major difference is Susie had Susan Steffes and Susanna Sharpe join her at the infusion room on Thursday and then for lunch. Yes, it … Read More »
Despite having low platelets, red blood cells and white blood cells, last weekend was quite full. All of Susie’s siblings, except for Doug, were in town. The funny thing is they were in and out, so not at the same … Read More »
At the start of this week, Susie’s platelets were at 8k (i.e. very very very low). The plan of action was a week of daily intravenous steroids. If the steroids did not kick start her bone marrow production, then we … Read More »
When we last left off, Susie had a blood transfusion right before New Years day and we had stopped chemotherapy. Her platelet counts were very low and they were raised above 50k from the transfusion. After New Years day her … Read More »
Well it has been quite a week. We were watching Susie quite closely during the weekend, as her platelets were below 50k. On Monday she came in for her normal radiation treatment at 10 am and then followed it with … Read More »
Susie has completed four weeks of radiation therapy, or more accurately 21 days. This last week was three days of treatment, rather than five, as she was off Monday through Wednesday having a wee Christmas break. Because Christmas fell on … Read More »
Susie has now completed three and a half weeks of radiation and chemotherapy. We’ve gotten her rash mostly under control. With the steroids, most of the bumps have subsided. She still needs to take Benadryl to combat the itchiness, but … Read More »
Susie has now completed two and a half weeks of radiation and chemotherapy treatment. As I posted last week, our main challenge has been getting her full body rash/ hives under control. After a week without the antibiotic Dapsone, her … Read More »
This was Susie’s first full week of radiation and chemotherapy treatment. I wish I could say it went smoothly, but it was quite a challenge. Susie stopped taking Dapsone on Tuesday, but her full body rash/ symptoms have not reduced. … Read More »
Susie had the pleasure of having a short week for her first week of radiation and chemotherapy. She had radiation Monday through Wednesday and was off on Thursday and Friday. She had a bit of nausea at the beginning, but … Read More »
Here we are, it is the end of 2013 and it seems some highly critical decisions/ actions our government made have been bungled. The first is the Affordable Care Act/ healthcare.gov site. Saying that the rollout for enrollment was a … Read More »
As you all have read in the previous posting, we were recommended by our Neuro Oncologist at MD Anderson to treat the recurrence as a new tumor. So, this week was going in and getting ready for starting Radiation and … Read More »