What a great adventure!
Yesterday was Susie’s last day of physical therapy. It should have been a happy day, as she has progressed a lot in the last year. She is physically stronger, is more aware of her balance and now can continue with … Read More »
Masks have become a partisan badge one either does or does not support. There does not seem to be nuance in the discussion regarding the context and the participants involved. Some of the most vocal view this discussion as good … Read More »
Today is our wedding anniversary. We normally celebrate by going somewhere special. With Susie deaf in one ear, we like early reservations. This way restaurants tend to be quiet. With the pandemic and Susie being immune compromised, we have not … Read More »
It’s been two months since my last post. We were supposed to join my family in New England for Thanksgiving. I was combining the holiday with attending the 26th Annual Meeting and Education Day of the Society of Neuro-Oncology. I … Read More »
This week is the 15th International Brain Tumour Awareness Week, held from Saturday 30-OCT-2021 to 06-NOV-2021. This event is organized by the International Brain Tumour Alliance, and is intended to encourage activities that draw attention to particular challenges of brain … Read More »
This last week, I was chatting with a medical specialist friend. We were discussing clinical trial data, COVID-19 and confirmation bias. The conversation drifted to real world data (RWD)/ evidence (RWE) and observational studies with historical controls. While I am … Read More »
This week was the yearly Head to the Hill event, organized by the National Brain Tumor Society. I participated in the trainings and today joined meetings with senate and congressional staffers. It was the first time I physically met with … Read More »
With my work, I often interact with Physicians, Hospitals and Life Sciences companies. Seldom do my discussions center around brain cancer, but I often think about how whatever I am doing could be applied to cancer patients like Susie and … Read More »
I recently received an email from Count Me In’s Brain Tumor Project, previously called the “Brain Cancer Project.” Susie and I participated in the launching of the effort with other patients, advocates and the Broad Institute. In addition to volunteering, … Read More »
This last week, we traveled to Houston for Susie’s cancer follow-up at MD Anderson’s Brain and Spine Center. This is the first time, since the pandemic started, we’ve physically met with Dr. O’Brien (her neuro-oncologist). Actually it has been even … Read More »
Last week Susie had her regularly scheduled cancer follow-up, which happens every four months. Let’s start with the most important detail, which is her scan results show her brain cancer is stable. Stable means no progression of disease, i.e. her … Read More »
After September’s unpresidential debate, see Presidential Debate Shit Show, we’ve seen Corona Virus (aka SARSCov2/ COVID19) take center stage. This is partly due to President Trump and some folks who attended the Supreme Court nomination announcement for Judge Amy Coney … Read More »
Yesterday and today I joined the 2020 National Conference for the American Brain Tumor Association (ABTA). While I enjoyed yesterday’s webinar sessions, I was particularly looking forward to two sessions being held today (Saturday), specifically a Brain Tumor Board (facilitated … Read More »