Hyperbaric Oxygen Therapy

18 Feb

It has been over a month since Susie started taking antispasmodics.  We were hoping to see neurologic improvement, but her condition is largely unchanged.  We met with her local Neuro-Oncologist this week for follow-up and to discuss next steps. First and … Read More »

A SMART Syndrome New Year

5 Jan

The end of 2016 has been a bit of a roller-coaster.  We started the last quarter on a bit of a high.  Susie was doing better.  She seemed to have more energy with the addition of Hydrocortisone (swimming twice a … Read More »

Wetsuit Fights Feeling Cold

8 Sep

One of the side effects that has become chronic trying to recover from cancer treatment is always feeling cold.  This condition has ebbed and flowed over the last 3+ years.  We have worked around it with Susie wearing extra clothes … Read More »

L’shanah Tovah Umetukah

15 Sep

We are now at the beginning of the Jewish High Holidays, starting with Rosh Hashanah (the Jewish New Year).  The Jewish New Year is different than how many celebrate December 31st/ January 1st.  As a secular Jew, I feel it … Read More »

July Cancer Check-Up

11 Jul

We are now approaching the middle of July.  First the good news.  Susie and I returned from MD Anderson this last week.  Her scans are stable, no growth/ significant changes to report.  So, this weekend we are collecting our thoughts … Read More »

Spring Cancer Follow-up

19 Apr

Last week, Susie had her two month cancer follow-up with her local neuro-oncologist.  She had her MRI scans done the Friday before the appointment.  I normally request a CD copy for our records and to look at them in advance.  This … Read More »

Astrocytoma Genomics

26 Mar

I’ve been reading lots of articles regarding new developments in terms of brain cancer treatment.  Most allude to the different genetic types of Glioblastoma Multiforme (GBM) tumors, but none have really delved into what these mutations are/ mean.  So, I … Read More »

Carpet Bombing Brain Cancer

25 Feb

During the middle of February, Susie and I traveled to MD Anderson for her cancer appointments.  As I’ve mentioned in the past, we are alternating every two months between two neuro-oncologist (one in Houston and one in Austin).  Her appointment in … Read More »

First step in dreams coming true

14 Feb

This month marks a major milestone for me.  I have just joined IBM’s Watson Group.  I will be focusing on cognitive computing solutions for Healthcare and Life Sciences.  Combining my professional passion around software engineering with my personal interest in oncology … Read More »