Week 19 Escape
Last week started out on a low note, my Uncle Ed passed away unexpectedly. We were quite surprised by the news and automatically started to plan on how to get to Boston for the funeral. It took us a few … Read More »
What a great adventure!
Last week started out on a low note, my Uncle Ed passed away unexpectedly. We were quite surprised by the news and automatically started to plan on how to get to Boston for the funeral. It took us a few … Read More »
Susie has reached the end of March. It is hard to believe her treatment roller-coaster has been over four months long. We were sitting in the infusion waiting room on Friday, and Susie was chatting with another woman. This woman … Read More »
We have officially passed from Winter into Spring. Susie and I are enjoying our walks in the neighborhood. The trees are in bloom. There are flowers popping out of everywhere, even on our Rosemary plants. Speaking of which, Susie seems … Read More »
I recently read a very interesting and personally relevant article in IEEE Spectrum Magazine. It was about how IBM and Memorial Sloan-Kettering Cancer Center are working together to teach IBM’s Watson to read patient medical records and search medical literature … Read More »
We have officially hit the middle of March. Per my last posting, I was unwell the other weekend. No matter how much I tried to quarantine myself, Susie caught the virus and fell ill at the beginning of the week. … Read More »
Sorry for the delay in authoring an update, I was unwell over the weekend. I’m still recovering, so I will be brief. This week was similar to the previous week, except Susie did a few hip checks to garner more … Read More »
I look back at this week’s events and I realize that we had a very full week. No wonder we feel so tired. Though I am unsure if calling this week a plateau period is appropriate. Susie’s blood counts are … Read More »
As I sit here reflecting on this last week, I think about the strides Susie has taken. We’ve been trying to watch the Sochi 2014 Olympics each evening. While the wins are exciting to watch, it is the close finishes … Read More »
Last week’s challenges have not abated. While Susie’s motor deficit decline has stabilized, her ability to speak is impaired. Her control of motion and speech is better in the morning. As the day creeps along, it is more difficult for … Read More »
This week started off with a visit to see our local hematologist and neuro-oncologist. Susie’s Platelets remained above 20k, but her hemoglobin continued to go down. It ended up falling below 7, so Susie went in on Wednesday for a … Read More »
This week was much like last week, i.e. daily IV steroids and Thursday immunoglobulin (IVIG). The major difference is Susie had Susan Steffes and Susanna Sharpe join her at the infusion room on Thursday and then for lunch. Yes, it … Read More »
Despite having low platelets, red blood cells and white blood cells, last weekend was quite full. All of Susie’s siblings, except for Doug, were in town. The funny thing is they were in and out, so not at the same … Read More »
At the start of this week, Susie’s platelets were at 8k (i.e. very very very low). The plan of action was a week of daily intravenous steroids. If the steroids did not kick start her bone marrow production, then we … Read More »