Spring Forward (Half Year)

20 Apr

For the past six months, we’ve been managing life day by day and week by week.  This last week we met with Susie’s local Neuro Oncologist and Hematologist.  I’m happy to report  Susie’s MRI scans look good.  There is no … Read More »

Week 20 Rest

13 Apr

Susie has had a quiet week; no treatment and no doctor appointments.  She did come into Texas Oncology for some tests on Friday, but largely the week has been filled with good rest and relaxation.  The weather warmed up about … Read More »

Week 19 Escape

8 Apr

Last week started out on a low note, my Uncle Ed passed away unexpectedly.  We were quite surprised by the news and automatically started to plan on how to get to Boston for the funeral.  It took us a few … Read More »

Week 18 I Think I Can

30 Mar

Susie has reached the end of March.  It is hard to believe her treatment roller-coaster has been over four months long.  We were sitting in the infusion waiting room on Friday, and Susie was chatting with another woman.  This woman … Read More »

Week 17 Fatigue

22 Mar

We have officially passed from Winter into Spring.  Susie and I are enjoying our walks in the neighborhood.  The trees are in bloom.  There are flowers popping out of everywhere, even on our Rosemary plants.  Speaking of which, Susie seems … Read More »

Week 16 Spring Break

15 Mar

We have officially hit the middle of March.  Per my last posting, I was unwell the other weekend.  No matter how much I tried to quarantine myself, Susie caught the virus and fell ill at the beginning of the week.  … Read More »

Week 15 Space

10 Mar

Sorry for the delay in authoring an update, I was unwell over the weekend.  I’m still recovering, so I will be brief.  This week was similar to the previous week, except Susie did a few hip checks to garner more … Read More »

Week 14 Plateau

1 Mar

I look back at this week’s events and I realize that we had a very full week.  No wonder we feel so tired.  Though I am unsure if calling this week a plateau period is appropriate.  Susie’s blood counts are … Read More »

Week 13 Improvement

22 Feb

As I sit here reflecting on this last week, I think about the strides Susie has taken.  We’ve been trying to watch the Sochi 2014 Olympics each evening.  While the wins are exciting to watch, it is the close finishes … Read More »

Week 12 Sillypants

16 Feb

Last week’s challenges have not abated.  While Susie’s motor deficit decline has stabilized, her ability to speak is impaired.  Her control of motion and speech is better in the morning.  As the day creeps along, it is more difficult for … Read More »

Week 11 Motor Deficit

8 Feb

This week started off with a visit to see our local hematologist and neuro-oncologist.  Susie’s Platelets remained above 20k, but her hemoglobin continued to go down.  It ended up falling below 7, so Susie went in on Wednesday for a … Read More »

Week 10 Rinse and Repeat

2 Feb

This week was much like last week, i.e. daily IV steroids and Thursday immunoglobulin (IVIG).  The major difference is Susie had Susan Steffes and Susanna Sharpe join her at the infusion room on Thursday and then for lunch.  Yes, it … Read More »