What a great adventure!
Around six months ago, Susie and I talked about heading up to Washington, DC for the National Brain Tumor Society’s Head to the Hill event. I wanted to connect with other brain cancer advocates and help lend a voice to … Read More »
I’ve seen quite a few charts and graphs comparing the US to different countries. Some of these countries have much smaller populations and different demographics. This is especially the case when looking at countries in Europe. Some countries are more … Read More »
Just like we do each year, we celebrated our marriage in February. Many moons ago we would celebrate it with a Sunday brunch at an interior Mexican restaurant called Fonda San Miguel. It is a lovely restaurant, but the brunch … Read More »
My job with IBM has been very rewarding and intellectually interesting. I enjoy working in the world of Oncology and Genomics. However, most of my efforts/ time have been mostly focused on cancers that have high incidence rates, not the … Read More »
While we have gone on quite a few road trips and domestic flights in the last 5 or so years, we have not traveled internationally. Susie was just not up for a 9+ hour long haul flight with significant time … Read More »
When Susie was first diagnosed with brain cancer, back in January of 1999, I felt it was important to keep a journal and take notes with each doctor visit. I would read these notes a week before neuro-oncology appointments. Also … Read More »
We had a lovely two weeks traveling to see friends and family between Austin and Minneapolis. Our first part of our vacation was in Oklahoma visiting our niece’s family, followed by lakefront cabins with a childhood friend of mine from … Read More »
Before we went on vacation, Susie had a brain cancer follow-up. She had recently been diagnosed with osteopenia, where we upped her impact related exercise and added a calcium supplement. Over the last month to two, I noticed some negative … Read More »
I was looking back at my notes on experiences during Susie’s initial and recurrent brain cancer diagnosis/ treatment. My thoughts centered around what we might be able to do in preparation for another recurrence/ progression. The most challenging experiences IMHO were surviving … Read More »
After last Sunday’s #BTSMChat, I happened to come across a tweet inquiring if anyone was reaching a tumorversary or other milestone. This tweet obviously had me think back to when our life with brain cancer began and some of the milestones we celebrated along … Read More »
As the year comes to a close, I often reflect on past events and activities. Sometimes my reflections are purely going down memory lane. Other times they are around what could be improved. I do find it funny how our perspectives … Read More »
As a care partner to someone with brain cancer, I try to keep our day to day routine predictable. I’ve arranged tasks and expectations so our life is smooth flowing and is easy to manage. Most important to me is that … Read More »
This summer was quite the whirlwind. We watched our first child walk the stage for his masters degree and celebrated our second child’s summer job at Lin Asian Bar and Dim Sum. So much so, we had quite a few family meals there. Our … Read More »